A Rare Day



We went to Hungary's National Rare Disease Day and were thrilled to see the number of organizations represented. It truly was a rare day to have so many people who are affected by rare disorders to be under one roof, and it was a beautiful sight to see so many people working together to promote equality. We were also able to meet some new friends who are affected by Turner Syndrome and who are interested in working together to spread awareness and support to families.



There were tables with information available on numerous rare disorders, but not one for Turner Syndrome. It is my hope that Christ will use us to comfort others with the comfort that He has given us, and that every part of our lives will be used for HIS glory.




My eyes were filled with tears as I watched the dancers, who in that moment found such joy and freedom in their abilities. Christ offers unparalleled freedom and joy, and even hope in the midst of strange, daunting experiences. The acceptance that Christ offers is indeed rare among a hurting world that often fails to acknowledge the needs of our weakest and most vulnerable people.




"Let your light shine before men in such a way that they may see your good works, and glorify your Father who is in heaven."
Matthew 5:16

This Little Light



We recently visited a local "cave" which was really an old rock quarry. Rocks were cut out of this to use in the magnificent Parlament that sits on the Danube River. Now that this "cave" is no longer used for mining, some people have "rented" a small room inside to grow mushrooms. The cool, damp, dark conditions are perfect for growing mushrooms. We never would have known about this if some locals in downtown Diosd didn't whisk Monte away one afternoon to show him the little rooms inside. We've seen the cave many times but never went inside. I admit, I was a little apprehensive because it was completely dark inside, and we had to walk until we found the small light where the workers were. We were too late to get any fresh mushrooms, and they told us to come back at 8AM. We did get to share Christ with one of the workers - standing in the dark holding flashlights - and the reality is that this is what we are doing everyday. We are living in a spiritually dark, dark place, and are shining a little light into the darkness.

"I am the light of the world; he who follows Me will not walk in darkness, but will have the light of LIFE." John 8:!2