A Rare Day

We went to Hungary's National Rare Disease Day and were thrilled to see the number of organizations represented. It truly was a rare day to have so many people who are affected by rare disorders to be under one roof, and it was a beautiful sight to see so many people working together to promote equality. We were also able to meet some new friends who are affected by Turner Syndrome and who are interested in working together to spread awareness and support to families.



There were tables with information available on numerous rare disorders, but not one for Turner Syndrome. It is my hope that Christ will use us to comfort others with the comfort that He has given us, and that every part of our lives will be used for HIS glory.




My eyes were filled with tears as I watched the dancers, who in that moment found such joy and freedom in their abilities. Christ offers unparalleled freedom and joy, and even hope in the midst of strange, daunting experiences. The acceptance that Christ offers is indeed rare among a hurting world that often fails to acknowledge the needs of our weakest and most vulnerable people.




"Let your light shine before men in such a way that they may see your good works, and glorify your Father who is in heaven."
Matthew 5:16